Feeding tube problems anyone been down this road.
I need some help from peoples experience. I have been a GJ tube user since 2011. I have used several formulas a long the way jevity, osmolite, etc you get there picture. About 6 years ago switched to vital 1.2 and have had no problems till now. On April 23 I was admitted for breathing and feeding tube problem could not get feed above 20ml which is 500 kcal approximately. Went on ppn for about 7 days and was able to start tube feeds we got up to 35 when I was discharged got myself up to 55 after my discharge on May 6th. Well it got worse again Nausea, vomiting, severe bloating, pain diarhea, cramping. I went to my GI DR. On May 13th Her said it sounds like intolerance and to immediately goto the Emergency Room because you can't sustain on 20ml 500kcal
He said it might be feeding tube intolerance.
Since admission they have tried Kate Farms peptide based formula. Same results. Then they tried Vivonex Elemental Formula had same results. Pain and discomfort unbearable. They did CT Scan, a contrast study everything was clearvno blockages. Now the hospital wants re do everything with now using decompression. I am getting so frustrated because it is painful just to do tube feeds for 30 minutes. It is like they are doing everything to torture me. Then if that don't work they are going to repeat other formula using the decompression which I am teaching them how to connect everything because I have been decompressing for almost 15 years with all my tube feeds. Then if that don't work TPN is this ridiculous or am I being cynical.