hi everyone:)
just looking for some advice/reassurance/success stories! and mainly just wanting to vent to people who understand…
I have stage 1a classic Hodgkin’s lymphoma and have just finished 3 cycles of ABVD. my doctor was confident that this would be enough treatment, that my scan after 3 cycles would be clear and we’d stop treatment - he was kind of right… my latest PET (carried out after cycle 3) showed that the majority of the cancer has shown a CMR (he didn’t say what the deuville scores were), but there is one bit left that he feels is ‘borderline’ so we’re going to do more abvd and some radiotherapy. I suppose I’m just feeling a bit confused and deflated that I see so many people with much more advanced disease having negative scans after 2 cycles, I just can’t believe mine isn’t negative after 3, especially when my dr seemed SO confident.
the other thing that’s making me anxious is that he said we wouldn’t do another scan for 3 months after I finish treatment to avoid unnecessary radiation - this makes me so anxious that we’ll stop treatment without having a scan to confirm it’s worked.
has anyone else experienced anything similar and can shed any light or reassurance?
thanks so much in advance!