u/DanaDissent

▲ 13 r/eds+1 crossposts

Hi, all. I recently discovered that my 17yo daughter is likely hypermobile. All of her issues, complaints, injuries, etc., over the years just make sense with this condition. What do you wish you would have known sooner? What has helped the most? What do you wish others would do/would have done to support you? How have you adapted as time goes on? I have been researching this condition as much as I can, while waiting on her doctor to get her a referral to physical therapy, and any possible further testing. I went through the Beighton test with her and she can do all of the things it listed (score of 9). Anything I should ask her doctor about when we see her next? Any other referrals or tests? For those who do end up responding I appreciate your time. Thank you!

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u/DanaDissent — 24 days ago