I was diagnosed with stage 4 endometriosis this year. I had absolutely no idea I had it, but they found large cysts and fibroids and everything else when I went for a fertility consultation. I was stunned because I had no pain, and somewhat heavy periods but not anything that out of the ordinary.
I'm 43 so odds were already slim for any fertility success, but the endo was so bad that it was incompatible with fertility without surgery and they couldn't even attempt egg retrieval first because the cysts were too big, so they fast-tracked me for surgery, which I had two months ago. They removed as much as possible while prioritizing fertility preservation, and it was by all accounts a real mess in there. Everything was fused to everything else, but they basically sorted it, minus leaving part of the cysts so they wouldn't have to fully remove my ovaries.
The surgeon said things could come back and that normally she would put me on drugs to suppress that, but since we were trying to move forward with fertility treatments she did not since that would halt everything and I'm too old to delay.
Anyway, I healed well enough and had been feeling great, but lately I'm feeling these new sensations in my abdomen that I never felt before. Tightness, pulling, sometimes sharp pains. I gather this is what endo normally feels like? But I never had any of this before the surgery.
Has anyone else had endo surgery even though they were asymptomatic and then developed the symptoms after surgery? Because I'm terrified that this is what has happened, and also that everything has grown back already, and that I'm just worse off than I was before. It has also apparently torpedoed my formerly regular cycles although I guess that could go back to normal. But everything internally feels off and uncomfortable, and it was almost certainly all for nothing given the results of my latest blood test, which seems to suggest that the surgery also decimated my egg reserve.
I'm feeling really discouraged and scared and am not having much success getting to talk to a doctor to get answers that way. I'm supposed to get another ultrasound this month but my period is also late which is also frustrating because that never used to happen either, and I can't get the ultrasound until the period shows up.