My partner was diagnosed with GBM about 7 weeks ago. He is beginning week 4 of TMZ/radiation. Aside from the hair loss and fatigue, things feel strangely "normal". He is exercising, eating well, and fully independent. His cognitive function is 95% normal, aside from the occasional trouble recalling certain words.
I guess I'm struggling to accept this as reality when I know the nature of this disease. It feels eerie to have things be so "stable" right now. If I didn't know any better, I'd think he is totally healthy and fine. Of course, I am savoring every waking moment of this "normalcy" we are in, but I am terrified that I'm not adequately preparing myself for how quickly things can change. Has anyone experienced these feelings before? And if so, how did you navigate this grace period of hope, but also preparing for reality?
Thank you in advance for all the support, this group has been incredibly helpful to me.