u/Dapper-Put3672

I am so afraid this is going to devolve into a VXin3 convo so l am going to say up front that I'm just going to delete the post if we go there for the sake of actually engaging on the topic I'm asking about. Like, I'm begging, so we can actually discuss the matter at hand.

I'm not overly worried about the Hantavirus at the moment, but I also am a layman and am not hubristic enough to say it's not going to spread. l developed full-blown Lupus after the height of the Covid pandemic so I am curious to know how those of you who lived through it with full-blown Lupus were impacted by things like lower accessibility to in-person care and the hydroxychloroquine shortage.

Are there steps you'd suggest taking in advance of this or any future pandemics? I've done a decent amount of HCQ hoarding in case this administration decides to say it's curative for the next pandemic, but would love any other input you might have.

Thank you!

Went to NOLA jazz fest under the auspices that I'd be able to sit in the ADA area which is covered. Like so many of us, I can't be in the sun for very long without flaring. I was immediately denied upon entry.

I tried to make do with spf 70, UPF clothing and hat, huge umbrella so my ticket wouldn't be a complete waste. It heavily impact my ability to enjoy the fest (if the below photos here aren't enough evidence of that lol) . I use a cane for arthritis in my hips and was told I would not be allowed to be in the ADA area if I wasn't in a wheelchair. They had manual ones on site but my 75 year old mother can't push me around all day and my shoulders are so bad as it is that i have to constantly switch which side I use my cand, let alone wheel around.I explained all this.

 My biggest frustration is that it was very unclear that I would not be accommodated based on the ADA info on the website. I detailed my circumstances and offered a doctor's note. If I'd known, I might not have gone. I tried to hide my misery from my mom so she could have fun but I was sick by the end of each day that we couldn’t NOLA afterwards. I was in full flare, from which I have still not recovered, when I got home. After the 3rd day of requesting accommodation, I gave up. 

I'm so upset and just venting. I spent a fortune on this and I can't believe this is legal. Ugh.

https://preview.redd.it/mgaktsy4j50h1.jpg?width=1200&format=pjpg&auto=webp&s=3599adf0a6444db3bdb3bb64db9d0e1c9d98b170

https://preview.redd.it/yr0uebs1j50h1.jpg?width=774&format=pjpg&auto=webp&s=b06b51b7beb332c98fc830ecaf7c912f7f33cb5c

I have severe systemic Lupus and can't be in the sun for very long without seriously flaring. I made due with spf 70, UPF clothing and hat, huge umbrella and other stuff. I'd be lying if I said this didn't seriously heavily impact my ability to enjoy the non-tent shows (if the below photos here aren't enough evidence of that lol) . I use a cane for bad arthritis in my hips and was told I would not be allowed to be in the ADA area if I wasn't in a wheelchair.

I was offered a wheelchair but my 75 year old mother can't push me around and my using the wheelchair myself would A. put a lot of stress on my arms which aren't too hot either and I wouldn't be able to provide myself with enough sun shade while I was doing that.

My biggest frustration is that I was told over the phone that I would be accommodated and then was rejected accommodations when I arrived. If I'd known that, I might not have elected to go. I tried to hide my semi-misery from my mom so she could have a good time but I was pretty sick by the end of each day and was in full flare when I got home.

Did anyone else have this experience? I'm so disappointed as I've gone to jazz fest every year of my 39 years minus covid and this was my first Lupus fest.

edited to add photos

https://preview.redd.it/2m84u98yd50h1.jpg?width=1200&format=pjpg&auto=webp&s=ded57d49cc854c28f1e02086797c30671fdc1bcc

https://preview.redd.it/j7qpr0lyd50h1.jpg?width=774&format=pjpg&auto=webp&s=5743650ef1f18bef7683585882349305fec11dbf

Hi- local res here. I'm handicapped- pass, mobility device, etc. My mom moved trash cans off a handicapped spot that wasn't designated to an individual, outside a house with an empty driveway, on a mixed-use section of N. Broad. There were three in a row and only 1 was available. Owner ran out of his house berating me loudly bc his "band was going to park there". He nor anyone in his band is handicapped, per his own admission. We came back to this note. The crossed out word is that vulgar word for a female crotch. I have a photo of his house with the cans in the spot. Sleuth friend found him but I'm not going to ruin his life forever by fully outing him but does anyone know if there are any repercussions to be had here? I called 311 and they wouldn't do anything and I know hate speech is largely covered under the 1st. TIA

EDIT/UPDATE: Thank you to everyone who answered. Based on advice from some of y’all who know the ins-and-outs of this stuff, it looks like there is nothing I can do. I will move on and I’m confident one day he will do something like this to the wrong person. Thanks again!

https://preview.redd.it/iqrerqjp0zxg1.jpg?width=1170&format=pjpg&auto=webp&s=bfd5ba4555cb19bde2c5790e8d2c218d41202080