Should I keep trying to get an EEG ?
Hey, I could use some outside perspective because I'm stuck in an endless loop of overthinking and health anxiety.
I've had 4 convulsive episodes in my life (Nov 2018, March 2023, Jan 2024, July 2025). Every single one happened during a blood draw. Back then I used to just get vasovagal syncopes, but one day at 19 I completely seized up while feeling totally relaxed. Waking up was terrifying and super confusing (« Where am I? Who am I? Who are you (to the nurse)? »). The last time in July 2025, I bit the side of my tongue and felt like I'd hit the gym muscle-wise.
Recently, I realized that paired with my myoclonus (at rest in the evening and upon waking up), this could possibly be epilepsy. That realization sent me down a massive rabbit hole: I panicked, called the ambulance thinking I was about to seize, went to the ER for anxiety-induced vasovagal attacks, saw my GP who wrote a referral for a neurology EEG, and ended up back at the ER because I panicked and couldn't wait.
The ER docs told me it's 100% just severe vasovagal syncope because of the exact same trigger every time, and that an EEG is totally useless.
I asked some questions: they said I'm fine to drive, look at strobes videos, or go to theme parks.
Problem is, I'm convinced I described my symptoms poorly to them, and I mentioned my daily weed use (0.1g a night dry herb vape which I quit 2 days ago because myoclonus became scary for me, probably addin parano), so I feel like they dismissed it too fast.Now I dont have the referral letter anymore cause they kept it and I'm stuck looping between « I'm fine / stop worrying » and « I need to push for a neurologist », and I keep relying on AIs to answer endless questions.
Am I right to think there's really something to check here and keep pushing, or should I just take a deep breath and accept that I don't actually have a solid case for epilepsy?
Thank you for reading
Edit: forgot to add the myoclonus is sometimes only arms sometimes arms and legs, one time I recorded a video where I had 13 in 43 seconds, but could stop it by crushing a bank card in my hand.