u/DeviceConquest

Emotionally done with it all

I know i posted yesterday, about my A&E visits, but today I'm having a meltdown.

I have suspected endo, my previous post is still up if you need more context but here's a rundown.

I attended A&E a couple of days ago, after falling down the stairs and hitting my head quite badly, when experiencing dizziness, lower abdominal pain and chest pain. Told to go to A&E after ringing the GP and them telling me to go straight up. I pass out when im due on, or on my period.

Ive been sent there 7-8 times by a GP and other times taken there by relatives/partner due to excruciating pain or bad falls which resulted in injury, 15 visits in total in 10 months. Its embarassing now that im looking back because they obviously think im making it up after the comments made by the A&E doctor.

After the A&E doctor telling me that I was wasting their time, and that "people are dying back there, you dont need to be here" nd being told that they couldn't "diagnose" me with endo because of the pain i experienced before the fall, when I was there purely for the head injury and wasnt expecting a miracle diagnosis, im now sat here, contemplating everything. I told the doctor that I was scared about the potential of me hurting myself again, more seriously next time and now even more so not being able to attend A&E without being told im wasting their time.

Im going to be clear and say, i didnt go in because of the abdominal pain, i have to "deal" with that, im under gynea and gastro, i went in for a head Injury, whilst it may be because of my gynea issues, I wasnt there for that but it was made to be about a chronic condition i may have that is currently being investigated, and no head checks or anything were done.Told to go back to my GP.

The GP i saw the next day was sympathetic and apologised for the treatment I received, told me to go again if I did fall and hurt myself.

Im never going back. Im so embarrassed by the comments made and I cant stop thinking now that, "there's nothing wrong with me" and i genuinely cannot think straight right now.

I have an upcoming gynea appointment, and gastro too. Should I cancel these? Right now, i dont think anyone quite believes me.

I cant include pictures, but my chin, the side of my face and my hand is bruised from the fall.

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u/DeviceConquest — 6 days ago

Dismissed in hospital for other things, because of Gynea issues

For context, 31 female, suspected endo , all the symptoms going like heavy periods and pelvic pain, aswell as chest pains and passing out.

I know i might get judged for this, but I've attended A&E now 15 times in 10 months, after not going for years and years, I didnt go to my GP either for years, i stuck to just requesting medication on the phone (repeat prescriptions). I was admitted in December and they referred me for a colonoscopy and referred me to gynea. My blood pressure dropped to around 73/53 (apparently lower but that's what I recall seeing myself). I had a scan and there's inflammation on my large intestine and further investigation found ulcers too. But my gastrointestinal consultant is more inclined to think its gynea issues causing the majority of the pain.

Ive been told by the doctors to go to A&E, if I pass out, or if the abdominal pain is excruciating.

Passing out happens around the time of my period EVERYTIME and my most recent trip to A&E was 2 days ago, because I passed out due to chest and abdominal pain and fell down the stairs and banged my head quite badly and I could barely see properly and had usual head trauma symptoms. My mum dragged me to A&E because the bruise on my head/face is huge and ive been slurring and such since.

To make it clear, I don't attend A&E willingly most times, because I am scared sh*tless of the hospital. I am sent there by the GP, or taken there by family or my partner. Im either injured from passing out from pain, or im in so much pain im on the floor crying from pain.

The A&E doctor, who i had seen previously, is the one who saw me, and she told me basically that "people are dying here, i dont know why youre here" And im not even over exaggerating, that's what she said, and my mother was disgusted. "I dont know what you expect me to do".

I asked, where should I go then if I fall down the stairs or hit my head in future then, and all im in for today is the fall i had and to check my head out. She said she cant diagnose me, I told her I wasn't there for a diagnosis, im literally under gynea and gastro, so that isnt the issue. I was there because the GP sent me here because I banged my head. At this point I didnt care about the pain I was in when I passed out, I was there for a head Injury.

She then proceeded to tell me that they cant do anything about Endometriosis, which isnt why i was there(i didnt even push the reason why i passed out in the first place) and wouldnt even look at my head, which was clearly bruised with a black eye.

Its like, because im passing out from gynea issues, everything that happens is being dismissed.

Before anyone says I shouldn't go to A&E, trust me I wont be going back, im stupidly embarassed now for going in so often. I saw my GP yesterday and he was disgusted himself with what they said but told me to continue going if I do pass out or I am in pain and told me to complain to PALS.

I dont really know what to do now, because I am scared im going to really hurt myself one day from these "flares/episodes", but who actually cares at this point.

I have a gynea appointment on the 9th of June and Gastro on the 19th. Im tempted to say "F it" at this point and give up entirely.

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u/DeviceConquest — 7 days ago
▲ 7 r/Endo

31 female from the UK, suspected endo

I had an appointment today with my GP, after waiting for around 2 months. I'd attended a&e twice in the mean time for chest pain, I didnt want to go because they never really do anything but my partner and my parents insisted and took me. (Turns out its probably due to my spine being wonky and im now referred to physio).

I have suspected Endo with the usual symptoms- heavy bleeding, back/leg/hip pain, clotting, fatigue, i pass out on my period, gut issues and pain (going number 2), peeing a lot and uncontrollably on occasion, all sorts of things.

Ive had ultrasounds that showed nothing and I am due to go back in on the 9th of June for my second gynea appointment to see what my next steps are.

I made this appointment for today with the doctor 2 months ago like I previously stated, just to see if my results from the gastrointestinal consultant had come back (had a colonoscopy to see if it was gut related issues), and to just ask about the fatigue and stuff because I haven't had any medication or help apart from some Contraceptive pills (which aren't working) and some co codamol 😅

She, in a round about way said I have a lot of symptoms and they can't see what's wrong, and what I got from what she said, is that she thinks im making it up. I am devastated because this is the doctor who first referred me to gynea, suspected Endo in the first place and has helped me all the way through so far. Before this massive flare I had in October last year I hadn't been to the doctor for years. I strictly avoided going because I hate going 🤣

Im completely stuck now and to be honest, im super sad. Its been really effecting my mental health recently and Im back on sertraline again too because the sick feeling constantly, the not knowing what's wrong and the stress has messed me up.

This is more of a rant of frustration because basically being told in a round about way im a hypochondriac has messed me up considering they have been monitoring my periods and how they've effected me since I was 16...im 31 now so this has destroyed me.

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u/DeviceConquest — 24 days ago