u/Difference6450

I have all the symptoms of pancreatic cancer of the tail.

It started in 14th October 2024, I was on GLP-1 for 11 months. I injected as normal and within 10-20 mins I developed this deep scratchy niggling sensation in left flank. It lasted all day and wouldn’t go away. I immediately thought of pancreatitis as I know that was a risk.

The next morning I woke up and the sensation/pain was gone. I didn’t take the GLP-1 for the next day or two to see if it came back. It didn’t so I started taking the GLP-1 again (so stupid), I wa son it for 1-2 weeks before the pain returned the first week of November. So I stopped taking the GLP-1 that week.

Symptoms the first 2 months were the deep scratchy niggling sensation deep in left flank wrapping into left mid back. It wouldn’t go away, it didn’t change with movement or twisting and couldn’t be touched.

In December 2024, I developed left upper quadrant very light vague dull pain in the region 3-4 fingers below last rib bone left side. It would come after eating especially fatty food. I also had excessive burping on and off. I was loosing weight unintentionally. I also developed certain vertebrae in my mid to lower spine were tender and sore to touch.

In January 2025, the flank and back pain started to worsen and became a dull deep bruised ache like the aftermath of a punch, the scratchy internal sensation and burning and would worsen after eating particularly the bruised sore punch aftermath.

Then in March 2025 I suddenly developed this left shoulder blade pain that hurts to take deep breaths or push on my ribcage. I just woke up one morning and it was there, this has happened on and off throughout my 19 months of symptoms and later on I noticed a connection with eating would trigger it. My weight loss had stabilized, would go up and down afew lbs but remain within that.

In July 2026, I developed fat triggered vomiting for a week, and widespread abdominal pain began, like cramps, upper epigastric region, lower abdomen, belly button and sides of bellybutton, this would come and go throughout the day but was daily. It worsened over weeks and started becoming more and more constant, more severe and would worsen with food. It became more focused to upper epigastric region down in a jagged line to bellybutton.

By end of August 2025, it had worsened and felt like cramping, twisting, spasms, like a wet cloth being wrung out, like a drill drilling into my bellybutton and like rats trying to claw out. I developed radiating pain to base my neck and up my throat.

And by start of September 2025 it was so severe I was hospitalized and experienced a week long bout of fat triggered vomiting again, I got a right sided splanchnic nerve block in end of September with Depo Medrol which helped the abdominal pain but not the flank and back pain.

In December 2025, the abdominal pain started breaking through the block for a week and then went back to not feeling it. Then in January and February I felt breakthrough abdominal and throat pain again and then its like the block kicks back in.

In February 2026, I developed left hip pain with my period, it was sore to move and walk, stiff and feels like inflammation but would go away when my period was over. I also developed wide spread body pain when I eat too much sugar.

The left hip pain came and went with period in February, March and April 2026 and left when period was over but then in May 2026 and never left and is constantly sore.

I have done CT, CT Pancreas Protocol, CTA, PET FDG, MRI/MRCP and EUS and multiple EDG, Bloods, small pill camera, colonoscopy.

I’m not in month 19 of symptoms. I haven’t had more testing since very beginning of month 16

Nothing has been found.

Nothing else makes sense or fits my timeline of where or how the symptoms started and progressed but because all tests are clear all specialists are closing the door on me and saying functional disorder of some kind without an actual diagnosis of anything.

I feel like I am dying.

Has anyone or their loved ones have symptoms for over 19-24 months before diagnosis? With multiple advanced testing not finding any tumor?