u/Diotima_unicorn

Vent

I'm feeling so defeated. After struggling for a long time to get a diagnosis, I finally got a hEDS diagnosis just to have my doctor move out of the city shortly after. Now I'm, completely lost. I have tried going to several doctors since without any luck, and eventually, I just stopped searching. However, a few weeks ago, my hip subluxated, and I haven't been able to get it back into place. It has gotten so bad that I can barely make it from my bedroom to the bathroom and back. Today I managed to go to the doctor who's replacing my former doctor to see if I could get a referral for physical therapy or for an orthopedist, instead she just told me not to bother her with stuff she is not qualified to treat (even though I wasn't asking her to treat me, just to refer me to someone who could), and if I didn't know what to do or what doctor to go to, I could just use Google instead of wasting her time. I have an appointment with a different doctor next week and hope I can get a referral from him, but I feel like this will be yet another round of seeing multiple doctors and being dismissed again and again for God knows how long. I had to quit my job due to my condition, but I haven't yet been approved for disability, so I can't afford to just get private appointments with physiotherapists without a referral.
I know eventually it'll get better somehow, and I'll be able to at least be a bit more mobile again, but I'm just so exhausted of all this, and I hate not having a doctor I can rely on, but I don't have the strength to keep on searching.

EDIT: Please don't be mean in the comments, I can't take it right now.

reddit.com
u/Diotima_unicorn — 19 days ago