u/Disastrous-Archer938

Hi everyone, I’m looking for some advice or to hear from anyone with similar experiences.

I was diagnosed with PCOS after a few years of trying to get answers. At the time, an ultrasound also noted a small cyst/area and mentioned a possible risk of endometriosis, but I was told it wasn’t something to worry about.

Since then, I’ve come off the pill because it didn’t suit me (I had ongoing nausea and was even prescribed anti-sickness medication). My periods have never been regular, and recently I went around 4 months without one.

I’ve spoken to my GP again as my symptoms feel like they’re getting worse, and I asked about whether further investigation (like a laparoscopy) might be appropriate. I’ve also tried lifestyle changes, but I’m finding it quite draining managing everything without much progress.

It’s starting to affect me both physically and mentally, and I don’t really know anyone personally who has gone through this.

Has anyone here had a similar experience with PCOS (and possibly endometriosis)? How did you manage it, and did you have to push for further testing?

Any advice or experiences would really mean a lot 🤍

Hello, I have been diagnosed with PCOS which took me 5 years to get the doctors to actually take me seriously as they just passed it off as “normal” it’s just “hormones“ which looking back is a joke. I went for an ultrasound and at the ultrasound they confirmed there is a potential risk of endo as there’s a small sack. There reply was that this should not bother me at all, and that I should be fine. That was 2 years ago, I have since then came off the pill as I feel like that made my symptoms worse, my hormones were all over the place, I was nauseous all the time to the point where the GP prescribed me anti-sickness tablets. I havent had any regular periods ever. I went 4 months without a period and pushed back with the GP for further help as my body wasn’t agreeing with anything, I asked for a laparoscopy to investigate if the reason it’s getting worse is because I have endo too, or if they could potentially do something to help with the PCOS too. I have tried natural remedies but I’m getting exhausted with this. I don’t feel like Im myself, and it’s not only taking a mental but a physical toll on me too. Nobody in my family has suffered with this so I feel like I have nobody who understands or who I can got to for support. I appreciate any advice you could give me🫶