u/Disastrous-Range-917

Long story short. Was diagnosed with JME when young (now 40m). Spent years on Epilim as a before coming off at 14 due to not stopping jerks. Late teens and early 20s had a few grand meals which consistent of hours of clusters of smaller seizures increasing in size and decreasing gaps between them.

Not had full grandmsl or anything since for a long time. I self medocate with diazpam as a emergency med to stop this cycle. Which has worked for me.

However the anxiety around seizures and fear of having them resulted in an obsession with managing triggers, mainly sleep and screen time.

Anyone else feel like they constantly live i the fear of having a seizure and ended up having panic attacks and pseudo seizures as a result of that fear