u/Disastrous-Speech-24

Able account/NC Medicaid/transplant

Hey everyone, looking to understand all this, so explain it to me like I'm 5 lol. I'm on North Carolina Medicaid and looking down the barrel of a transplant surgery within a year or so. I will not be able to go back to my current job after. I know I can get SS benefits while I can't work but it says I can't have any savings over 2k unless it's in an able account...? I need to save as much as I can, I could easily put back 5k in that said year but if I were to give that to someone close to hold on for me that's fraud. Able kind of sounds like the government's way to keep me poor after giving me a real shot of a better life. I have a partner who will be taking care of me(he's working on his own savings), but he's going to lose work too. We don't have a lot of people in our lives to turn to and we have enough trouble keeping the lights on as is. Really unsure how to go about this. Thanks in advance!

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u/Disastrous-Speech-24 — 2 days ago
▲ 30 r/Cirrhosis+1 crossposts

Regrets?

Let me start out by saying I am not currently on the list but my doctor is pretty insistent I get on it. I'm 32, last meld was 11, alcoholic cirrhosis and very likely a cancer spot/lesion on my liver(hence his insisting, as once he confirms it that will significantly increase my meld score). I've been sober for 1 year 9 months. I'm in the process of quitting smoking both weed and cigarettes. I'm actively improving my diet, I currently work, and I have the best partner ever. But I'm also depressed as hell, I feel pressured, stressed and like my doctors are more interested in improving their rates than my quality of life. Because I've been reading all the side effects of the meds they put transplant patients on, the rejection risk, the fact that I may never be able to work normally again. It honestly seems like unless you score just the right organ or get one very young your only future is disability and suffering. Even as a high functioning alcoholic I was always very independent and I don't like relying on others at least not long term. I'm also poor though, so it's medicaid city for me. Is anyone else on a similar boat? Those of you with new livers do you have any regrets? Any advice? Thanks

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u/Disastrous-Speech-24 — 6 days ago
▲ 4 r/Medicaid+2 crossposts

So my doctor, a man who can barely afford me five minutes of his time, finally referred me to a mental health office. I know in order for Medicaid to cover mental health I have to have the referral from my primary, but once I have said referral am I required to go to the specific office he referred me to? Or can I go about finding care myself at another establishment that also takes Medicaid? I ask because I looked into the practice he referred me to and it has the WORST reviews. I live in NC and I'm on healthy blue Medicaid. Thanks in advance!

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u/Disastrous-Speech-24 — 18 days ago