u/DoesTheOctopusCare

Progression despite treatment

Recently got confirmation that my cancer is growing despite chemo/immunotherapy. We knew this would happen with my type of cancer since it's so aggressive but I was hoping it would take longer. I was only on treatment for 3.5 months before it stopped working.

My oncologist has stopped my treatment so I can try to enroll in a clinical trial. There's a promising CAR-T cell therapy one happening in my city. I signed the consent form for step 1 yesterday (screening tests only). It's so hard to just sit here and wait to hear back and be doing nothing for my cancer at the moment. It feels paralyzing all over again like when I was first diagnosed. My oncologist also said it's time to start figuring out how to quit my job and file for disability.

I've also been referred to "Experimental oncology" as well. Not sure what that will be like, I will find out next week.

I hope everyone else is having a better week than I am!

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u/DoesTheOctopusCare — 1 day ago