u/Doorou

Hi,

I'm Ezra, 25yo, and i've got diagnosed in April 2026 with ALS.

It's been a long journey since my first symptoms in July 2024, where physio didn't work, symptoms gotten worse without explanation and I suffered from my lack of diagnosis.

I've dealt with a lot and still today, I have to grieve for all my projects I'll never do.

I've got family and friends who I love and they all cared about me. So I'm afraid about how they'll cope when I die.

I know I shouldn't think about that but I want to prepared them for what will happen in a few years.

I've thought about letters because I love writing.

Do you have any advice on how should I prepared them/what will be good for them after I die?