u/Dorothysunderpants

My husband was my primary caregiver during my surgery and recovery. I am mostly back to independence now but I oddly feel guilty about how I was when I was not entirely lucid during my hospital stay. Apparently, I would get a bit combative. He says I didnt say anything mean but I know he was not sleeping at all while I was in the hospital for almost two weeks... was supposed to be three days but I had complications with my back being in pain and walking and fainting.

Curious if anyone else has experienced similar guilt over having your spouse take care of you during such an intense period?

On 3/20 I had a lemon sized tumor removed from my right frontal lobe after it was found during an epilepsy protocol MRI. I feel mostly fine now, which messes with me a bit mentally. I was told I would have just a headache after waking up post surgery. Well, intense back pain and nausea and some delusions aside, that was true.

My only thing now is I have issues with knowing what day it is even after looking at the calender. Like I thought today was mother's day but that is sunday! Haven't missed any follow up appointments since I have my husband helping me keep track since he drives me everywhere right now. thank goodness

So my conundrum:

I am curious if time distortion gets better or if I will likely always be a little off. I am just happy I know what month it is now and the year. Post surgery, I said apparently some really off dates but always knew why I was in the hospital and who I was. But evidently it is not 5 years ago.( I thought it was December 2020 post-op for a few days... also thought i waa in harry potter... the delusions were rough)

I am very fortunate that I have both IDH mutation and co deletion so they just want to observe with periodic MRIs for rhe rest of ther year so no chemo or radiation for now at least.

My back still gets sore easily and I get fatigued easily. Does the fatigue improve? I feel going out to dinner knocks me out for the rest of evening lately... or just carrying conversations with people for too long.