u/Efficient-Remove8346

▲ 9 r/ostomy

upcoming appointment with ostomy nurse & wanted to share

i'm going to be seeing my ostomy nurse to get refitted for a hernia belt (it's preventative as I use a wheelchair and they just want to make sure we do everything to prevent hernias). but i had to take a survey and i dunno if yall have to do surveys before your appointments so i wanted to share the questions. They are a scale of strongly agree to strongly disagree and the middle answer is unsure. hope this can help some of yall when discussing your feelings with your medical team.

OSTOMY ADJUSTMENT INVENTORY (OAI-23)

I feel that I have recovered from my stoma operation.

I don't like to touch or see my stoma.

I have a meaningful life even with a stoma.

I enjoy food and drinks as much as I did before my stoma.

My stoma inhibits me from having a proper bath or shower.

I sleep well without worrying about my stoma.

Because of my stoma, I feel like I am not in control of my life.

I am reluctant to mix socially since having my stoma.

I have now accepted my stoma as part of my body.

I cannot get over the shock of having a stoma.

Because of my stoma, I limit my range of activities.

Because of my stoma, I feel that I will always be a patient.

I am always conscious that my stoma may leak, smell, or be noisy.

I have accepted the changes in my appearance which were caused by the stoma.

I am grateful that the stoma has given me a new lease on life.

Caring for my stoma is difficult.

I feel like I am less sexually attractive because of my stoma.

I feel angry about having a stoma.

Despite my stoma, I feel I have a rewarding life.

I will be able to manage my stoma in the future.

I am always anxious about my stoma.

With my stoma, I feel that my life-threatening experience has passed.

I can engage in a variety of activities despite having a stoma.

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