u/ElKat0315

MRI results are in…

So I told myself I wasn’t going to look at them in the portal and have a good weekend but of course I couldn’t help myself. Now I can’t sleep. And all I am is confused. I am trying to shorten it and added some of the report parts in. I’m always in need of hope and positive stories but I’m so tired of all of this that I don’t even know how to feel about these scans and reports at this point. I’m not scared. I’m not mad. I’m not sad. I have no feelings. Literally NO FEELINGS…….

The brain MRI showed two new small lesions 3mm and 7mm in the left frontal region, which are suspicious for metastases. The 7mm lesion on the report said that it was cystic and looked like it had signs of prior bleeding and said not typical? Thankfully I’m not or haven’t had any symptoms, not even headaches. My brain was clear previously.

The spine MRI showed mixed picture. There is progression in bone metastases in the thoracic spine (T4 and T7) and lumbar spine and pelvis, including the sacrum and left pelvic bone.
Specifically New metastases in:
T4 (mid-upper spine)
T7 (mid spine)
Existing metastasis growing:
L4 vertebra (lower spine)
Pelvis:
Growth in:
Right sacral ala (tailbone/upper pelvis)
Left posterior iliac bone (pelvic bone)
Sacral lesion may be starting to:
Affect nearby nerve openings (S1–S2 region)

I have some stable areas, specifically
T5, T6, T10, T11 spine lesions → unchanged
Small muscle lesion near T6 → stable
Some prior spine disease remains stable after treatment
One lesion in the chest near the spine has decreased in size,
Chest/spine-area lesion near T9:
Shrunk from 49 × 30 mm → 36 × 19 mm

So basically I have areas that have progressed, areas that are stable, aaaaaaaand areas of improvement. Wtf is even happening? I just started the trodelvy around 6-7 weeks ago almost finished with the second cycle so I haven’t been on it long. I know it takes time to work. I know that the last mri that I had was in December and a lot has happened since then treatment wise. Has anyone had this happen with so many mixed results? On Trodelvy? I hope my onco doesn’t give up on me. I don’t even know what to ask my onco at this point, if she’ll want to change treatment or add radiation? And the brain mri results. I know 3mm and 7mm is small but this monster cancer is now all over my body. My whole spine pretty much except my neck, my pelvis, my sacrum, my lungs, my LIVER, and now my BRAIN. And that’s only the parts we know about. I am numb. I don’t know how to feel. I can’t even cry. My back pain has been increasing which also sucks. So I was kind of bracing myself for some bad news. I know when I post here, all of you amazing people always know how to redirect me to a better mindset. Sorry for the long post and long rant. Still holding on to hope friends.

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u/ElKat0315 — 6 days ago