We need a third player and possible alternate. Playing Thursday nights in SF. Our team was formed for strictly fun and social outing so if you are new to the game you'd be in good company.
PALS has decided to withdraw care. They are on ventilator support and have required 24/7 care since their diagnosis several years ago. The ALS has progressed to the point they cannot move without assistance, and they feel their quality of life is no longer satisfactory.
I don't know how to stop being a caregiver after so many years of 24/7 intensive care, but I am also completely burnt out and exhausted. I feel like I am in free fall and trying to deal with all of the emotions.
My loved one is choosing not to make any end-of-life plans beyond withdrawing medical care, so I don't know what to do next. We don't have children; family on both sides are minimally involved in the day-to-day decisions. I don't have much in the way of a support system.
How does one cope during this transition?