u/Ellalead

Hiya,

My mum was diagnosed with MND back in February, and since then we have not been given any more details, on what type it is, when can she start trials etc

She has had multiple blood tests but no one has followed up to explain the results.

She is going private but her neurologist is also pushing her to go through the NHS, but the two parties are not sharing information.

Are these timelines normal? She is on Riluzole and seeing a speech therapist, so getting support but would just like to know what type (Still hoping for the type that Tofersen works on!!), and what all these blood tests mean ...

Thanks