u/Emotionalmamaof2

Just looking for some advice if anyone experiences anything similar.

I’m on Trodelvy / Keytruda 2 weeks on and 1 week off. I was diagnosed with liver and bone mets. The Keytruda attacked my thyroid but they said it’s very common so about a month ago they put me on levothyroxine to combat my thyroid. I’m on a daily prednisone steroid since diagnosis and the only other med I take is gabapentin for my nerve damage in my upper chest.

Since I started the levothyroxine I’ve been having stomach bloating to the point of where I am uncomfortable if I eat or drink. My clothes all feel very uncomfortable due to the bloating. It goes away after a few hours but it’s a very hard bloating. I’ve been bringing it up to my nurse every week but she says keep an eye on it as it could just be a combo of all the medicine.

My bloodwork is still all “normal” my CA 15 3 remains at 22 since March (I was diagnosis in December and it was a lot higher). My alkaline phosphatase has remained between 90-120.

I guess I’m just fearing that my labs aren’t picking it up and that it could be liver progression which terrifies me the most. Everyone online keeps saying “once it hits your liver it’s all over” I’ve heard that more times than I can count. Unfortunately I was diagnosed with liver mets from day one.

If anyone has any insight of anything else the bloating could be from id love your suggestions. I am increasing my water intake a ton to try and help. It’s made a small difference throughout the day. I sent a message to my doctor asking for an endoscopy if it continues because I’m definitely terrified

Thank you in advance and sorry for the lengthy post

I have the chills reading it. Maybe this is some hope for us with mTNBC

Lately all I read about are the success stories for hormone positives and all the new meds etc. I am so happy for all the progress for them I just really wish there was more positive things happening for triple negative stage fours. I’m so scared all the time and I feel like everyone just forgets about us with mTNBC because it’s too painful to acknowledge that we don’t have many options. I have my really positive days and my really sad days. Today is definitely one of the really sad days. I’m so sick of chemo and knowing I’m on this “for life” however long that may be is so scary. I have this awful taste in my mouth 24/7. I am tired 24:7 and scared to work out too much because I’m scared to break or sprain something. I’m gaining so much weight because I’m on prednisone everyday and i don’t even recognize myself anymore. No hair anywhere on my body, severely swollen face and body. I look like a lunatic all the time. Ugh im so angry that we are all here. I want more options for us !!!! I’m Sorry I just needed somewhere to vent today.