u/Empty-Coffee21

Hi there,

I’m planning to peruse through the thread to find more posts on the topic, but in the meanwhile wanted to introduce myself. My uncle has Down syndrome. My mom has been his caretaker since before I was born and since she was 18. (She’s an angel)

He was diagnosed with dementia in the fall and it seems to be worsening and they are struggling. He has a doctor who believes that medications will only offer minor help, while causing significant side effects, so that is out. Basically I’m just looking to hear from someone who’s been down the path and what worked best for you and your families. His symptoms are worse at night.

Thanks in advance.