u/Endofus74

Inquiry for cranial leakers

I got notification that I have a bad cranial leak likely from sphenoid sinus. Where did everyone go for treatment and after treatment, how were things like symptoms? Those that have IIH that caused a leak, how did you keep both in balance to prevent the leak from recurring?

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u/Endofus74 — 2 hours ago
▲ 2 r/CSFLeaks+1 crossposts

CT Cisternogram and atraumatic needle

Hi Reddit world. I am desperately trying to find a location that does CT cisternogram with atraumatic needle. I’m in Washington state and I am not able to find anyone. Any help would be greatly appreciated. I’m working with a new radiologist in Texas. She’s currently unable to do the procedure and suggested I look for someone that has the ability to do it and she can send the referral.

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u/Endofus74 — 1 day ago

Patient advocate

Hi. Has anyone used a patient advocate for all the hurdles we have to go through? If so, who do you recommend?

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u/Endofus74 — 11 days ago