Mum end of life
I feel like we are constantly in limbo. My mum has been on end of life care for about a month now. She was in hospital but we managed to get her home with a live in carer. As soon as she was home she seemed to deteriorate over night, she stopped being able to swallow her tablets, she was barely eating or drinking her communication was minimal, we were at a point of thinking it's only a matter of days before we lose her.
She is now in a nursing home as the carers couldn't offer her the support she requires as she was not sleeping at night which was stopping the carer from getting sleep.
We have had a lot of help from Phyllis tuckwell they have been amazing, the district nurses have set up syringe drivers for her anti seizure medication.
Since being in the nursing home, she has become more alert, not enough to think she will make a recovery but now I don't know what to expect.
Has anyone else been in a similar situation?
I don't want to lose my mum but she has no life, she is bed bound and so upset and confused.
I just want her suffering to stop.