Hard spots that rise up and go
Hey all, Crohn’s here since I was 18. 40 now. Male. Currently on the new generic replacement or whatever for Stelara since it stopped being covered.
Stelara wasn’t seeming to help either. But, my symptoms for several months have been really bad bloating a couple hours after I eat. I get hard spots that roll up and I can gently push them and my stomach will growl loudly and the spots will retreat. It does this cycle for several hours after meals.
I’ve had a few NG tubes from blockages, a “fair amount” of scar tissue at the terminal ileum area, and constant diarrhea. Crohn’s has made me anemic and the only way I can get an iron intake is through IV iron at the hospital. I know I’m low when I start getting HORRIBLY bad/life questioning leg cramps on the inside of my knees thrust run up to my groin. I have to watch how I get up from a chair, couch, bed, etc or it can throw them into a cramp. The absolute worst cramps I could possibly imagine - they make me nauseous and break into a sweat. And they’ll last for upwards of 5 minutes.
I’ve been taking some peptides, with hopes for some relief. I saw some improvement after a couple weeks, but it stopped and I’m now right back to where I was.
Just tired on not really being able to eat without pain coming afterwards. I routinely do 24+ hour fasts to give my stomach a break. I don’t eat raw greens (roughage), peelings, nuts, seeds, etc. My weak spot is sugar - I’m wondering what would happen if I just tried cutting it out completely.
Anyone ever had those hard spots of stuck gas that cause such constant pains? Suggestions on relief from them?
Appreciate the responses. Good luck to all with this sucky diagnosis!