▲ 39 r/cfs
I just want to dance!
I've accepted this shitty disease since my life changing crash in February '26. I'm housebound. Mostly prone bound (chasing an orthostatic intolerance diagnosis + dysautonomia).
But damn it. I'm the type of person who likes to dance along to music at home. In the shower. The living room. Sometimes, like this morning, I think f-k it! I've need a shower for over a week. Waiting for a "good day". This morning was it! Showered. Had a dance to a few songs. Then it hit. The dizziness. The pain. The palpitations. Burnt through all 14 of pace my points and now I'm crashed in bed.
This is shit.
(Not looking for advice. I use visible. I know i shouldn't over exert. But sometimes I need the dopamine hit. Something to make me feel good for once!!)
u/Euphoric_Extent_8453 — 15 hours ago