u/Even-Counter8148

▲ 1 r/Anemic

Shoulder and chest pain

Hi. Since june 2024 my ferritin hgb and iron keep going below due to irregular periods after endo surgery (4-5 days heavy bleeding with 18-23 day cycle) the last blood work said iron is 8 ferritin 1 and hgb is 11 (healthy min for hgb is 12). Since last 2-3 months i developed serious arm chest upper back and neck pain in both sides 7/24 and diagnosed with fibromyalgia, also having impending doom sensation and anxiety/ panic attacks like i cannot breath feel like gonna faint or die, cannot even sleep properly due to muscle pain.. rest of my blood work are fine except low vitamin d.
Have you ever experienced such thing due to being anemic? I had internal bleeding 2 times before the surgery caused by endo cysts, which was so intense that i required infusions with hgb of 7.2 even that time i didnt feel much except shortness of breath and low blood pressure.

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u/Even-Counter8148 — 24 hours ago
▲ 2 r/UCTD

Ivf with UCTD

Hi
I will start ivf treatment soon and also diagnosed with UCTD. I want to ask how was your treatment without any medicine, as i am not using any yet. Will use aspirine and plaquenil only during pregnancy as advised from doctors. (Ssa positive ana positive rest are normal) my question how is it went during hormone treatment, most of the doctors says this is like a hit or miss, either people are feeling completely fine and also in remission during pregnancy or a huge flare with real disease development happens especially during hormone treatment phase. Quite scared here to be honest.. please let me know your experiences.

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u/Even-Counter8148 — 4 days ago

Intense pain but normal mri results

Female 32, medium sports background since 4 and no injuries nor accidents. Only had 3 surgeries but not related to spine area. Healthy except fragile capillaries (petechia everywhere in body) (whole blood tests are fine)

I have been having a upper back pain especially between shoulder blades, neck pain, shoulder pain, cannot carry anything or do sports any more because of chronic pain since 1 year. It become so worse that i cannot do any daily chores anymore.
Doctors says mri is fine with hemangiomas but my pain in centralized in t3/t4 location (i mean there is a permanent pain in this area on my spine 7/24 hurts during movement and there is a muscle type burning pain affected in the locations i mentioned above). I even circulated that part with help of my husband and doctor confirmed the main pain location is indeed t3/t4. Could you please let me know what else can be done to check this part?. I have been on sick leave since 1 month and i cannot work anymore. Physical therapy has made my pain so much worse.

I hereby added my mri pictures too. I dont know what to do who to ask advise or request help. Maybe one of you had something similar before…

u/Even-Counter8148 — 13 days ago

Hi
I have developed serious drug allergies and need to be get tested asap. Could you please recommend a good clinic or hospital that will accept me without a gp referral around Cologne and Dortmund (i can pay) I need to get skin prick/ provocation tests done to determine a suitable nsaid,antibiotic and muscle relaxant.
Thanks!

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u/Even-Counter8148 — 19 days ago