u/Excellent-Park-1545

Hi everyone,

Im currently on this regimen carbo/taxol/bev/pembro because the chemo radiation didnt work. I know a few of you here have been on this regimen as well where I also learned that TIDVAK is the 2nd line of chemo if the first doesn't work and there are potentially 3rd/4th, etc line of treatments in the States.

For those of you who are in this state or was, would be great if you could share your experience - ie I get the sense from previous threads that once we go down this road eventually the cancer is still going to come back and its just a matter of when - but I could be wrong. So I'm just looking for some more clarity and would be grateful if any of you could share your journey with me as I'm on the cusp deciding my next step. For some additional background, I have been looking into getting a second opinion at some US cancer clinics but it looks like all of them require in person consultations and its going to cost me an arm and a leg since I need to travel there from Canada.. so I have to decide whether this is even worth it for me.

Thanks all.

Hi ladies, I hear so many good things about fasting but I havent done it yet since chemo keeps my weight down. However it's something I'm definitely considering once my chemo sessions are done and my weight is back to normal.

Have any of you done it and what was your experience like with/after it?

Thanks!

Hi everyone,

I hope this is the right forum to ask my question. I had a nephro tube put in a few weeks ago due to some kidney issues and given my outlook I'm probably going to have this thing forever. Im starting to get real itchy and Im told I cant do much about it. For those of you in this position, just wondering what methods have you dealt with to relieve the itch?

I spoke to different nurses about changing the dressing myself and they seem to really frown upon that. But having to wait 4 days to get a dressing changed by them can be torture especially when the itch elevates. Do you change your own dressing? and if you do have you had any issues/complications?

Thank you for your attention!

Hi everyone, I live in Canada and I want to pursue getting a consult with an oncologist outside of NA such as Thailand, China, etc since I hear so many good things about their healthcare system. However, I dont want to travel all the way there without having a virtual consult first. Have any of you gone through this avenue and if so could you please enlighten me as to the path via which you were able to get this consult? Thank you!

Hi there, for those of you who have been able to access virtual meetings with oncologists from countries like Thailand, China, etc for consults, could you please shed light on how you were able to get it? Thank you.

Hi everyone, so I spoke with my doctor who reviewed my CT scans (I have 2 new masses in my pelvis after I did radiation + chemo last year, so they gave me 1st line of chemo treatment bc radiation was off the table) and basically what he said was, continue with the next 3 chemos and if the masses are controlled or smaller, then I will go on maintenance. I told him I've heard that you can get more than 1 line of treatment (I think I've even read here someone had 4 lines of treatment) and his answer was very vague. My treatment is Taxol, Carbo, Avastin and Keytruda which I understand from a previous thread is this is standard protocol.

For those of you who have had multiple lines of chemo treatment and I understand it's different for everyone, could you please share what you were given? Thanks!

Hi everyone, just wondering if any of you has had a nephroureterostomy tube and if so what is your experience with it?

I see a lot online about nephrostomy tubes but not nephroureterostomy tube. My understanding of the latter is it goes from your back, through the kidney and into the bladder.. and unlike a nephrostomy tube where you need an external bag for the urine, this method allows the urine to drain 'inside'.

Thanks!