u/Extension_Writing204

I was wondering if anyone else who has been treated for DIV can offer some insight.

I’m 15 days into a 30 day treatment and I’m having improvements (no more discharge/ i can sit down now but not for long/ bladder pressure has improved) but I’m noticing a sunburn like feeling if sit certain ways or walk too much (still can’t do underwear or pants) was this something you may have experienced too? Is it because the inflammation has died down and my skin cells are baby cells right now? I haven’t seen anyone talk about their healing process just that they had it for years undiagnosed and had to switch to a few different treatments.

My treatment is 5% hydrocortisone and 0.01% estrogen

Hey guys, I just wanted to get on here to post a little about my experience with DIV just incase it can help anyone else. It’s super rare, classified as a chronic condition and honestly had I never gotten a wet mount done I wouldn’t of been as fortunate as I was to catch in just a few months rather than years.

There’s really no known cause, I believe mine was a series of unfortunate events such as back to back BV, followed by a severe yeast infection, followed by a chemical burn from washing dye out of my hair and getting the runoff on my vaginal tissues. (Legit all back to back)

My skin felt so sunburnt, I couldn’t even sit, let alone lay comfortably. I knew the burn would take a while to heal but weeks were going by with no improvement, since my skin barrier was down I ended up with BV again. My gyno was convinced the BV was causing the discomfort so I got treated with metro gel, but it was sticky and I was getting these weird white clumps (not yeast it was like my skin cells mixed with metro) I knew in my head something was NOT right. She had me do just estrogen for 2 weeks and it still wasn’t helping, literally nothing was.

At this point I had been diagnosed with neurogenic pain, hypertonic pelvic floor, internal cystitis (because one of my symptoms were constant bladder pressure, it was hurting to pee, I had gotten checked for a uti 300 times but it was negative) chronic vaginitis, vulvadynia, and trigger points. Every single gyno and even my first urogynocologist tried convincing me that all of those things were causing my pain.

I started noticing a random flux of discharge coming out at random times and in random amounts and it was off-color. Not bright yellow, not bright green, just off. During this time I was scheduled for trigger point injections but I kept telling my dr I thought I had an infection, she said she’d check before but she didn’t we just got right into the injections and let me tell you, they hurt so fucking bad I only got one done. You know why they hurt so bad? Because I had DIV with transitional BV, had I gone through with the injections I would have never gotten in with my new urogynocologist and would have never gotten a wet mount. 3 months of no answer and I finally had one.

If wearing underwear hurts, you have unexplained redness and burning, or abnormal discharge, or you start feeling raw it’d probably be a good idea to get a wet mount to rule out DIV.

I’m currently on a hydrocortisone treatment compounded with estrogen. Day 11 and I’m noticing some improvements especially with my bladder pressure and the rawness level