Just got diagnosed, a bit scared
I (25 afab) just got diagnosed with Chiari Malformation Type 1. I read the handout my doctor gave me, and I've been looking at a lot of the sites people have shared on here. I'm not gonna lie, I'm pretty scared. I'm pretty sure my descent is 10mm (the results were a little confusing to read but that's the number I saw on there), and I read that's mild to moderate. I've been having daily migraines/headaches, so they found it in an MRI when looking for possible migraine causes.
I'm gonna see a neurologist and neurosurgeon soon (early June it looks like). Any advice? I don't even know what to ask them, or how to process any of this. Am I going to be okay? Just trying to gather as much info as I can at this point, I guess. I don't know how to feel.