u/EyaNasri

Clinical trials for treatment

Hello, first i’m really sorry that you guys went or going through this ..
I’m looking for options for my mom that she was recently diagnosed, can someone please help me on how to navigate through clinical trials process how to apply and what are the criteria’s and…
I’m trying to be optimistic and fight this with her and considering all possible options.

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u/EyaNasri — 3 days ago

Im terrified, can you give me an idea of what i should expect !

Hi my mom 58 and she started developing speaking issues, they gave her steroids till they make a chemo+ radio plan.
She walks fine eats fine but am terrified of what to expect !
From the side they told me this is not curative and the other side I see her doing okay and can fight this !

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u/EyaNasri — 12 days ago

Hi, i’m new here !

My husband recently relapsed with a brain CNS leukaemia after 2 transplants over the last 3 years diagnosed while we are on our honeymoon i managed that and we r good so far …, so i asked my mom to come and live with me to help so i can get back to work at least after years of short term/ long term breaks (i live abroad), till after 6 days of her visit she had a very hight blood pressure 180 and i noticed a little delay for a second when she speaks so i took her to EG, there was diagnosed to have a brain stroke, i felt things aren’t right so after a week i took her again and then they told me it might be a glioblastoma and we r sure its a tumour.

We did the biopsy, and now we r waiting.

Im tired, cancer ruined my entire life taking 2 most important people of my life. I’ 28 by the way ….

People are telling me take ur mama back home there is no cure for this.

While I have a hope that she will make it if we do the surgery + radio + chemo.

I cant honestly afford that its like 650,000$ … but im trying.

And i cant let her go to die. Trying to make the hospital make payment plans for me, she left her home to help me, so we stopped the insurance back home and i only got her insurance here for 100.000$ limit till i get more money to make it bigger, i didn’t imagine i will be in this shitty position in just 6 days of her arrival !!!!!!!!

Im sorry for all my messed up energy, please can you share your stories and ideas with me of how did you afford this, should i get a lawyer should i spare her the suffer ? Is what am doing right even for her ?

My emotional state is not considered anymore, i sense i have no feelings anymore….

u/EyaNasri — 21 days ago