We are the Facial Pain Association - Ask Us Anything! (Live AMA on the 27th)
We will be answering questions LIVE on May 27th at 7PM to 8PM EDT! As we know that schedule does not work for everyone in this subreddit, please drop your questions below and we will answer them when we are live on the 27th.
We are the Facial Pain Association, the largest patient organization supporting all people affected by neuropathic facial pain, including trigeminal neuralgia, leading the world in resources for information and healthcare guidance. Through programs of education, personal support, and advocacy efforts, FPA supports patients, their loved ones and caregivers, and healthcare professionals who diagnose and treat people affected by facial pain.
We are excited to have the chance to talk with r/TrigeminalNeuralgia users about our mission, ongoing and upcoming projects, new data discovered through the Facial Pain Registry and, of course, answer any questions about trigeminal neuralgia. Many thanks to the mods of this subreddit for helping us!
Who will be joining us for the live AMA on the 27th:
FPA CEO Melissa Baumbick
FPA Manager of Development and Professional Outreach Liam Winters
FPA Marketing, Communications and Events Manager Natalie Merrithew
FPA Social Media Coordinator Rose Gaffney (Who has bilateral TN)
National Chairmain of the FPA's Medical Advisory Board Raymond F. Sekula Jr. MD
FPA Medical Advisory Board Member Wolfgang Liedtke, MD, PhD
FPA Support Group Leader and Peer Mentor Jennifer Yates (Who has bilateral postherpetic neuralgia in V1)
Learn more about us, our projects and our resources!
Who we are: https://www.facepain.org/about-fpa/who-we-are/
The Facial Pain Registry: https://www.facepain.org/facialpainregistry/
Find Support: https://www.facepain.org/find-support/
Read our Quarterly Journal: https://www.facepain.org/tag/quarterly-journal/
Listen to our podcast: https://www.facepain.org/podcasts/
Understanding Facial Pain and related articles: https://www.facepain.org/understanding-facial-pain/
While we are excited to talk with you on the 27th, please do not hold back from contacting us if you need resources and support now. You can fill out our Custom Help Form on our website to get resources tailored to you: https://www.facepain.org/find-support/custom-help/