Lynch Syndrome and Family history
Within the last 5 years my mom has had both colon and breast cancer which led us to finding that we both have lynch syndrome. Likely others in our family did too and just didn’t know until now. My mom’s dad and brother both died young of colon cancer. My mom is the first one to have breast cancer in the family and it seems to still be debated on if breast cancer is lynch related or not. Since finding out I have lynch, I have been getting breast exams, mammograms or ultrasounds every 6 months as preventative care as well as colonoscopies yearly. I already had one breast lump scare that they basically said was nothing. I missed my last 6 month check up so it’s been closer to a year since my last breast ultrasound and mammogram.
Last week I found a new lump. It is a little bigger than pea size and it’s thick but not super hard. It is right under the top of my areola and right above the nipple. The breast it is on has been tender and looks slightly bigger than the other and I have been having general random dull stinging/burning pain all over the breast and armpit area. I called my gyno oncologist that I see for lynch and my regular gyno who helps monitor as well and the soonest they can get me in is still two full weeks away even with them knowing my history.
Idk what I’m looking for but I just constantly feel like a ticking time bomb with my family history and lynch syndrome. The family history is so direct with my moms dad and her only sibling all having colon cancer and me being the oldest child of my moms plus the only one with a lynch syndrome diagnosis so far. I am only 33 but my uncle died at 26, grandfather was 55 and my mom turns 55 this year and has been battling both agressive colon and breast cancer on and off for several years now. Is it even possible to have developed cancer this quickly with all the monitoring I have? Is that even a normal spot for a tumor or something else?
I have 2 and 3 year old daughters. I am just so terrified of them losing me early. I also developed an absolutely severe death anxiety when my youngest was born. I developed this anxiety seemingly out of nowhere right before finding out about the lynch syndrome so you can only imagine the spiral after. I have always been someone who focused on eating whole foods and working out, living holistically but being in the trenches of two toddlers my health has completely gone down the drain with lack of sleep and eating process foods just to survive each day. I know I have to get a grip back on my health, stress and sleep with my already high risk but it is so hard.
Thanks for reading my vent, please pray for me and send any wishes or advice you may have especially if you also have lynch.