u/Ferretfan691

I had an episode in October 25 of aura migraines happening 3x a week for 2 months. Shortly after an ice pick headache, they nearly completely stopped. However, I noticed an electrical pain that was constant and got diagnosed with aura migraines as well as occipital neuralgia. For the neuralgia I was given amitriptyline in January. 25mg, then moved up to 35. MRI showed nothing abnormal.

In February, I had a pain in the right side of my jaw lasting 2 weeks. I’m no stranger to pain (from previous injuries) but this floored me. Nonstop crying in my university accommodation.

One morning I woke up to the right side of my face swollen 3x the usual size, got diagnosed with parotitis, given antibiotics for a week and sent on my way. This occurred 5 more times until April.

NHS waiting list is 36 weeks for an ENT so after all this, I went private, got an ultrasound and discovered that I have pneumoparotid, the ability to push air and water into my parotid salivary glands. Less than 200 recorded cases.

To top it off, the dry mouth caused by the amitriptyline made it so saliva was not pushing through the duct as much and allowed bacteria and other foreign material to enter the ducts and glands, causing immense pain.

No doctor, side effect information, packaging or online source EVER warned of this. I’m currently lowering my dose gradually and just firming the side effects while I undergo separate treatment for the neuralgia. Has anybody else experienced anything remotely similar? I feel very alone with this.

I had an episode in October 25 of aura migraines happening 3x a week for 2 months. Shortly after an ice pick headache, they nearly completely stopped. However, I noticed an electrical pain that was constant and got diagnosed with aura migraines as well as occipital neuralgia. For the neuralgia I was given amitriptyline in January. 25mg, then moved up to 35. MRI showed nothing abnormal.

In February, I had a pain in the right side of my jaw lasting 2 weeks. I’m no stranger to pain (from previous injuries) but this floored me. Nonstop crying in my university accommodation.

One morning I woke up to the right side of my face swollen 3x the usual size, got diagnosed with parotitis, given antibiotics for a week and sent on my way. This occurred 5 more times until April.

NHS waiting list is 36 weeks for an ENT so after all this, I went private, got an ultrasound and discovered that I have pneumoparotid, the ability to push air and water into my parotid salivary glands. Less than 200 recorded cases.

To top it off, the dry mouth caused by the amitriptyline made it so saliva was not pushing through the duct as much and allowed bacteria and other foreign material to enter the ducts and glands, causing immense pain.

No doctor, side effect information, packaging or online source EVER warned of this. I’m currently lowering my dose gradually and just firming the side effects while I undergo separate treatment for the neuralgia. Has anybody else experienced anything remotely similar? I feel very alone with this.