Has anyone experienced tingling in face and hands? Is it a big deal?
I started Privigen last month. Right away, I had tingling around my nose. They added Benadryl and a steroid and the reaction didn’t get any worse.
For my next round, my doctor switched to Octagam. We did the premeds and I still had the tingling. It felt mild to me, but the nurse was really freaked out. I think she made it seem a lot worse than it was and my doctor ended up telling them to stop after only a half hour. Later that night I started getting tingling in my fingers, and now my doctor is hesitant to move forward.
After the headaches passed after my first round, I had the best two weeks in like four years. My diagnoses are undifferentiated connective tissue disease and Behcets. I’ve tried so many different drugs and this is the first one that felt like it could actually work. Is the tingling really that big of an issue?