Feeling hopeless
Hi everyone, I’m on mobile so I apologize if the formatting is weird.
I’m 17 years old and have a multitude of health problems my whole life. To just talk about the relevant areas I have bone cysts in my pelvis and have had bone infections in both femurs. The pelvis and back pain has been my main issue for the last few years of my life, and I have had many treatments and have attended physical therapy for the last roughly two years. Recently, I started experiencing knee and thigh pain that was very similar to the pain I experienced with the previous bone infections. I was honestly nearly 100% sure it was another bone infection as it felt like bone pain and was (and is) debilitating.
I went for an MRI of my knee and my thigh and all they found is evidence of Hoffa’s syndrome. I know this is so stupid because it’s so much better than having a whole infection and everything, but I genuinely feel so hopeless. I’ve been reading a little on the condition but it practically doesn’t align with my symptoms at all, my pain is not localized to my knee and all of the recommendations for patients (ice, NSAIDS, not putting it into painful positions) do not work for me, I have tried ice and NSAIDS and it’s basically zero affect on me at all, and no matter the position of my leg the pain occurs. I know I’m probably getting ahead of myself because I’ve only read the report and haven’t actually met with my doctor, but I genuinely don’t know what I’m going to do if my only recommendations are physical therapy and NSAIDS. I don’t think I can mentally handle more physical therapy. I’m going into college and physical therapy is such a time consuming process and I just feel like I cannot handle doing it anymore. I just don’t know what to do and idk it just makes no sense to me that they found absolutely nothing but evidence of hoffas :(( I just don’t know what to do or where to turn from here or what to say when I meet with the doctor