I just want to rant .ive had endometriosis since i was 16 .at that time a since ive never really heard of anyone else having it .least not were i live .i always thought it was a rare thing .an years ago i never bothered talking to anyone about it because if I couldn’t get my doctor at that time to believe me that something was wrong why would anyone else.i believe ive had it since i was 16 but it took me till i was 19/20 to get an actual diagnosis then till i was 30 to have a decent gp who listened and actually prescribes me decent pain relief that brings my pain score from 12/10 to a 4/10.in first few years of having it it was just round period time i would get it extreme pain in stomach that would cause me to black out heavy bleeding it would put me in bed for 4 to 5 days.when I was maybe 20 my consultant agreed to do a lap were I found out my ovary was attached to intestines with it .they sorted it I wasn’t to bad for couple months but eventually went back to same thing .extreme pain heavy bleeding blacking out in bed.eventually me bleeding became abnormal I was bleeding all time pain got worse .tried every pill going every pain med they would give me at the time nothing helped.it took years of begging an convincing them I didn’t want any more kids for them to agree to do hysterectomy so at 39 I had womb out .would not take my ovaries. Was ok for month or so it cured the bleeding .but now still I’m in extreme pain all the time now I now have endo and adhesions an after a few scans done I have cysts on both ovaries.so on top of the pain that’s worse then labour I have a constant sharp sometimes throbby kind of pain on my right side .every so often my left side will add to it as well .then all the other symptoms that’s now effecting my bladder my back my leg etc.sometimes it’s worse on a night and the pain will wake me up.so more often then not tired to.sometimes the pain gets that bad I’m in bed for days I get nausea I can’t eat.im loosing weight and the rest.
Couple years ago we got a new gp an id been working with him to figure out the best pain meds for me to use which would give me a bit of a life as now because I have endo adhesions and cysts they won’t operate.too risky coz they don’t know what they will cut into .so now been on these pain meds couple years now so unless my cysts flare up it’s been going ok made life more bareable.
There’s my rant .sorry guys just nice to be able to talk about it.