u/Fit_Difficulty_8667

▲ 2 r/ADPKD

Update on me taking JINARC for a month

Hello everyone good bless you all, I just got my blood lab results and fortunately I'm taking the meds well, my AST and ALT actually went down before my AST IS 31 and my ALT is 53 and now it's 17, 40. BUT unfortunately I got scared because my TP went up by 1 point and my creatine went to 94 from 77,

I'll be quite truthful to you guys but I did eat a bit of red meat, 2x3 inch pizza, and small cup of ice cream because it was my grandma's BDAY like 3 weeks ago.

Did it cause my creatinine to spike? But regarding to my diet now after the situation is fine oats and apple for breakfast, vegetables with almost no salt because I use spices, White meats and such.

Please comment what are the effects of the meds you. Thank you guys we will all live longer.

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u/Fit_Difficulty_8667 — 7 days ago
▲ 4 r/ADPKD

Update on myself ring diagnosed with adpkd at 23

Thank you for the support regarding this disease, I already accepted my sickness and have to be stricter on what I eat from now on. Currently taking jinarc but unfortunately my nephro mistakenly provided me a lower dose 30mg/15mg and we don't have the enough money to cover the cost of my medicine, so I have to go to our local government and ask for assistance. Again thank you guys for the support much love, and may God help us all.

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u/Fit_Difficulty_8667 — 26 days ago
▲ 2 r/ADPKD

Taking Jinarc

After obtaining my meds through government funding/assistance. I finally obtain my meds. I usually drink 4 liters of water a day, does it increase more like 5-6 L?

I guess I'll be fine with it, Pray for and hope this drug will not have serious side effects

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u/Fit_Difficulty_8667 — 1 month ago
▲ 8 r/ADPKD

Just got diagnosed with ADPKD

Hi I'm Miguel at 23 right now, and was diagnosed with ADPKD as per what my nephrology said, I have a 3.4x3.3x3.2 cm size cyst on my right and 5.3x5.6x5.4 cm on my LK. I'll be getting a CT scan to know hows my kidney or it's function. My blood work is normal and my creatine, phosphorus, and potasuim is normal, My mom died at 54 from CKD late stage, I'm really scared right now and I don't know what will I do the meds that the doctor will provide to me is very expensive in my country. Can you guys provide me any pointers on what to do and donts.

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u/Fit_Difficulty_8667 — 2 months ago