Hi guys, just joined pretty much because i need some advice...
I, (34f) feel like my body is literally failing me lately. I’m a fellow zebra with hEDS, Fibro, Sleep Apnea and a stoma since 2018. I also deal with Seronegative Inflammatory Arthritis (which i started new immunosuppressant meds 2 weeks ago), scalp psoriasis and Hidradenitis suppurativa.
I’m currently 5 days into a trial for auto CPAP for moderate sleep apnoea (AHI of 20), but I don't feel like it's helping yet. My heart rate is still taking the absolute piss. I’m hitting 130-140 BPM just doing basic shit like making the bed, and my Visible data shows massive spikes even at night while I'm wearing the mask. (Oxygen is 95% during the night which is fine but sleep consultant is worried about my heart working overtime and my body not getting the rest it needs)
On top of that, I’m tapering off Sertraline (down to 50mg) and starting new antidepressants meds (that my rhum said are good for fibro pain), so my stoma output is pure water and I’m still waking up at 3am feeling proper wired. The tip of my nose is hurting so much from the cpap mask, f40 if anyone has any tips. Also i keep waking up every couple of hours from the air pressure hitting 12ish.
My question: Did CPAP actually help your heart rate spikes or did you need a beta blocker as well? I’m exhausted and just want to know I’m not making it up lol. Cheers! 🦓🥄
Ps. Do you think i might have pots? Or am i looking too much into it? I know theres alot of factors concerning my heartrate, so i dont know if this is normal for my body...
Also ive attached my recent hip mri. If anyone has anytips on anything that can help while I wait for physio, that would be amazing 🙏