u/Former_Storm4529

I got my surgery date - July 24! SSD from SSNHL

I got my surgery date - July 24! SSD from SSNHL

On February 18, 2025, I experienced sudden and complete hearing loss in my right ear. As you can see, my low frequencies bounced back after 4 steroid shots, 20+ horrible days of oral steroids and 9 HBOT sessions. The tinnitus was horrendous for months but I am now almost completely habituated and many of the tinnitus layers resolved. I used the hereos app and streaming podcasts while watching subtitles faithfully for months. It turns out, you can’t train a broken speaker. 😅 Hardest year of my life!

I’m both elated and terrified that I get a second chance at hearing in my right ear. I want the surgery to be tomorrow while at the same time wanting to cancel it.

My biggest fear is that the tinnitus will come back and get worse. It’s a bit irrational because the odds don’t support that fear, but the odds don’t support me being a victim of SSNHL! I’m trying to work through this fear and accept that if this does happen, my brain habituated and resolved a ton of tinnitus and it can do it again.

I mostly wanted to say thanks for sharing all your stories and support. I’ve read so much of this sub! I really appreciate it.

What did you all do as you were waiting for surgery? Also, would love to hear from anyone who had a similar situation!!

u/Former_Storm4529 — 6 days ago

I’ve been lurking for a while and I’ve just had my eval today and could really use thoughts.

Feb 2025 I had ISSNHL and had profound loss (heard nothing) across all frequencies. After steroids, injections and HBOT, I recovered normal lows up to about 300 and then a quick ski slope to profound for everything else. I’m 43f.

My WRS today with an aid was 24% and my sentence score was 40%.

I am a candidate.

I was really hoping to preserve my existing hearing…. But based on something that happened today in the booth (her fully plugging my bad ear made the reactive tinnitus go away) made my audiologist say it’s like I have a broken speaker. I’d agree. A hearing aid just made the crazy noises that come with sound…. Crazier.

So, now I’m super nervous that preserving the hearing means I’ll be stuck with broken hearing.

So do I chose between fully deaf in that ear plus cochlear and, what I have today, some feeling of stereo sound when I play my piano, but otherwise mostly chaotic noise in conversation and in crowded spaces.

I sent my surgeon a note. He’s at OSU and a leading researcher on hearing preservation so I’m sure he’ll have a thing or two to say on the matter.

Just wanted to hear some thoughts and hear and introduce myself.

reddit.com
u/Former_Storm4529 — 25 days ago