My son has had horrible akathesia on Latuda. We are now switching to rexulti. We have tried so many things. This is so hard and so frustrating. I know it’s so hard to get meds right but I’m afraid he is going to have to lose his job, he only has short term disability. At what point do u qualify for long term disability and is it even something you can live on. He had a good job, this is just so hard.
I’m writing mostly because I don’t think anyone understands. My son has schizoaffective disorder and I just find it heartbreaking, and exhausting to the point that I can’t imagine myself ever being able to handle this. My nerves are shot, I’m in Menopause and I just think this is going to be the end of me. So many horrible things have happened to me over the last 10 years. I don’t see any hope. How in the world are parents handling this nightmare/ this new reality for a once normal child. I find it unbearable to watch him suffer. I’m basically just waiting to die. I do nothing. I’m in constant crisis mode. I need the medication to work.