u/Fryman23

Let’s dig into the thyroid for a bit because it’s been on my mind…or 6” or so below my mind.

C’mon! That’s comedy gold! Anyway….

How is your thyroid post treatment?

Did you lose functionality? Totally or partial? Did you know something was up before the blood test indicated? How did that feel if so?

How far along post treatment were you when the issues began? Did you get 35 radiation treatments? What is your approximate age? Did you do anything to try to help your thyroid before it gave up? Has anyone heard of anything we can do? Right now I’m just doing what I always do, which is being super duper active and being exposed to lots of natural light, etc…(all things to help hormone levels in the body).

For reference I am 46 M, 11 months post now(*high five!), HPV+ at base of tongue, spread to one very large lymphnode group under my jaw. Stage 3. Full dosage of 35 rads and 7 Cisplatin.

I had my 10 month CT scan and I thought everything went great. My doc said it was wonderful, and that my recovery was progressing very well. He switched my post scan timeline to 6 months for my next CT (instead of three) and said if that looked good then I’d be on the yearly timeline.

Then on the drive home I read the CT scan report. It noted a 5mm ground glass nodule in the lower portion of a lung. It also said this was likely benign. Then it said “no significant evidence of recurrence” and the last CT from 3 months ago said “no evidence of recurrence”. Scan report was written by the same person. So all that’s gotten pretty deep into my head! I’ve got a call in to my doc and I’m just freaking out a bit in the meantime.

Has anyone had one of these ground glass nodules show up? If it moved to your lungs what did they initially see? Was it a ground glass type or a totally different presentation?