u/Fugazi_Resistance

4 Days Post MVD lessons

4 Days Post MVD lessons

Hi,

Wanted to post my post MVD lessons.

I had the surgery at Stanford with Dr. Lim

When I woke up I underestimated the amount of pain I was going to be in. Someone said that its hard to sleep. I brought a pillow and I still could not lay down. It hurt laying on my side or my back. It's horrible.

I still have inner ear pain and a hard time hearing out of my left ear.

I agree that I have phantom TN pain in my jaw. I now think it's related to my poor neck pain. My neck felt like I had the worst whiplash. It's hard to distinguish if I have neck or if it's incisional pain.

The facial whipes came in handy because I had benedine in my face and chest. I was able to brush my hair, I had glue in it and having it short came in handy. The button pj's were great because I couldn't raise my left arm without neck pain. I also have a sore on my forehead which was seaping.

I didn't get a catheter so they wanted me to pee on a periwicke.

One resident was working on discharging me the first day. But, my pain was not in control, I had numbness all over my head and numbness across my jaw. I advocated to speak to Dr. Lim, I was sent a chief resident who was understanding and I was allowed to stay another day.

The drive home was very difficult with the neck/incisional pain hurting with every bump, turn, stop. I received pain medication before my hubs drove home. Not sure if a neck pillow would have helped.

Apparently there is an association between TN and MVD with migraines. I had 3 migraines yesterday. Today is better.

u/Fugazi_Resistance — 7 days ago

MVD Hair

MVD scheduled for Monday. I had planned on shaving the left side. But, I kept ruminating about the pre-op discussion of matting, knots and glue. So 14 inches donated and I dyed it reddish. My brother said I had some gender dysmorphia because the shaved side, but I started to embrace it.

u/Fugazi_Resistance — 15 days ago