Looking for other autoimmune/inflammatory persons that benefited from hysterectomy
Hi, I’m a 26 yo female with POTS, EDS, possible endometriosis, and an autoinflammatory disease associated with the NOD2 marker. It all started around 3yo with monthly fevers and sores around and in my mouth. I had PFAPA and got my tonsils removed, that fixed everything until I hit puberty. Once I started my period I developed pots and got diagnosed with hEDS. Fortunately pots is the least of my worries these days. My reoccurring fevers have worsened and it’s always during my luteal phase. I also struggle with dermatitis and all over musculoskeletal pain. I have a theory that being in my “fertile” years plays apart of it. Instead of my flare being for just a week it feels constant. I’m on illaris and it’s not helping. I’ve been on for almost a year and have increased doses. I’m looking for people with similar diagnoses who have benefited from hormone replacement therapy or a hysterectomy. It feels like it’s the only thing ruining my life.