u/FunnyMicrobe571

I’ve been in the process of trying to get a motorized wheelchair for 5, almost 6, months. The reason there has been such a huge hold up is the fighting with doctors, I’ve had to switch my care provider 3 different times due to stone walling my calls and refusal of service simply cause they believed I didn’t need it.
In the span of a singular night I had a flair up so bad that I was immobilized for months. Moving hurt and I had to go to the hospital so many times in the span of 2 months that we ended up meeting our yearly out of pocket budget.
I have regained some stability, but I still am unable to walk from my bed to my car or even to the bathroom and back without feeling it in something.
My recent problem has come to a head was when I switched to my recent care provider. He sounded sympathetic and wrote me an in-depth diagnosis document stating that I needed mobility aid (specifically an electric wheelchair) and a lot of physical therapy. During that same appointment he said he would send in a prior authorization for the wheelchair as soon as he can. That was 2 months ago, insurance has had no attempts of a prior authorization being sent in and all I’ve been getting is “We’ll have to ask the doctor and call you back” with absolutely no call back.
I’ve already spoke to my insurance and they have currently opened an investigation on why this process is taking so long with absolutely no result on my providers end. A few days after insurance opened the case I got a message saying they would send the script. They proceeded to send me a paperscript that they had scanned with the word “Electric Scooter” on it. I’m unsure how to proceed with this. The necessary actions will be taken (informing insurance and getting a new pcp) but what can I do about the wheelchair? I’m unable to work a proper job due to me being unable to walk and I’m unable to move around my school due to not having the mobility to do so. I’ve quite literally had to put my life on hold since this flair up and the lack of mobility or care Im getting is hindering it more. If anyone might have anything that might help, it would be much appreciated!

I know I shouldn’t but I feel so defeated. I went to my primary physician to get her to sign some special transportation service paperwork as well as some paperwork for me to get a handicap decal. She said due to them lock down on this I would need a official diagnosis from the doctor that diagnosed me with hEDS. So I called the office up and asked if they could send the documentation over to my physician, turns out, when the doctor that diagnosed me refunded my appointment (He refunded it cause he said he couldn’t do anything for me) He never added the diagnosis to my chart, and I got my diagnosis months ago. So now I have to find a new rheumatologist to diagnose me again, even though I’ve been trying to get this diagnosis for years. I’m just so tired of this, the constantly having to advocate for myself, and even when I feel like I’m getting so close to being able to manage this illness, a small step to more independence and gaining my life back, it feels like I’m just feels like the moment I get back up the rug is pulled from under me. This honestly is just miserable

Hi! I’m currently having a flair up of my EDS but I’m meant to be having my implant removed and an IUD placed in on Monday due to some other medical issues, any tips and tricks on how to help with the after pain? Or anything I might need to look out for after the procedure? Tips on how to prepare are also very welcomed! Thank you!