At a loss
Hi everyone 28F I have suffered with occipital neuralgia for 4 years now. I was hoping to get some thoughts from anyone who has had the decompression surgery or nerve ablation? Honestly just any thoughts in general. I’ve had multiple rounds of Botox and nerve blocks. Sometimes they work, most often not. I had gotten Lyme back in 2022 that’s when these “ice pick” headaches started. I then spent 2 years going from doctor to doctor was told “you just have a sinus infection” treated like a crazy person, put on antidepressants and spent just about 6 months on doxycycline until I finally met my neurologist who is wonderful. I’ve tried all the protocol medications, tizanidine, toradol, naproxen, nurtec, ubrelvy and honestly a bunch more. Nothing seems to help. I’ve been in pt for almost 2 years on and off. I’m going on a month long headache/migraine and had another nerve block 5 days ago. It’s just not helping. I don’t know what to do anymore. My shoulders are always sore/stiff and the back of my head always hurts mostly the right side but it switches every once in awhile. I can’t move my neck most days. It’s been debilitating to my life. I found this forum and it’s been really validating for me because I’ve felt so alone in this.