Ileostomy help/tips
I’m six weeks post LAR surgery with a temporary ileostomy (Female) located in the upper right part of my belly. I’m ready to get back to a regular exercise routine (walk 4 miles a day and begin strength training again). I use the two-piece Coloplast SenSura Mio connect light barrier with a barrier ring. The problem I’m having is that the ostomy feels heavy and uncomfortable while standing long periods and especially when walking fast. There is just a constant tugging feeling like it’s gonna drop off my body. By the end of the day the skin under the barrier feels sore. This happens no matter what I do. I keep it empty, I’ve used Ostomy secret panties, I’ve tried the belt that came with the Coloplast welcome box and I bought a knock-off SIIL ostomy belt from Amazon - none of which work very well. I understand that getting enough exercise is important so I’ve just been supporting the barrier with one hand while I walk. Obviously this is not ideal and won’t really work for strength training.
I’ve never had a leak (knock on wood) and my barrier seal seems to be holding. I have a tiny bit of skin redness when I change out the device. As I mentioned before, it seems to sit higher on my belly than most ileostomy bags. I do have a bit of a tummy, although I’ve lost 14 pounds following the surgery, so I’m not sure if my belly plays a role in this tugging feeling and the soreness. Anyway, I’m just looking for tips or for someone to let me know that this is “just how it is…”.