u/GloomWeaverxX

Question: During periods of remission, does that mean our nerves aren't being compressed?

Curious if there's anyone here like me. I've been diagnosed TN2 (by 3 doctors, none of which are my neurologist). My symptoms have come on gradually. About a year ago, I had a bout of heat intolerance, then occasional dizziness, then constant dizziness, then my face started to flare a little, then a little more, then I got ear pain, then my face spent most of the day flared and it got hotter and hotter and increasingly red. Now a pain specialist diagnosed TN2, followed by a dentist, and a dermatologist.

All imaging came back normal except my neck MRI. Multiple bulges and a shallow broad based herniation between c5 and c6. Any one have their issues tied to neck problems? Anyone have their symptoms come on super gradually like mine?

I've called so many of these "specialists" in my area and despite their websites all claiming they offer comprehensive treatment, I get told that they don't. Wtffff. How am I supposed to get treatment?!!? Had anyone else run into this or is it just a US or better yet, FL thing?!!?