u/Gorgeoussniaa

I had my kidney biopsy done while kindly listening to old school r&b ( the doctor put it on ) . It was painful cause I couldn’t get sedated due to a med interaction & it was not painless , I dropped a tear once he snap a Snapple , he did 3 🙄

Now I’m nervous about my results which never happens but my nephrologist was very headstrong about me getting this because he says it could provide a clear answer because based on labs something is going on and he did say he has been following my urine and lab trend and he said it’s odd that I have WBC in my urine but now my wbc dropped its 3 hemoglobin 9 hematocrit 28 rbc 3 protein has been high since last year 29’s-40’s I feel awful vitamin d low despite trying ever damn Pills ! Ferritin high but inflammation can cause that & folate is 2! Despite vitamins ! Rheumatology said she believes its malabsorption but ugh Like any ideas , advice , if u had a biopsy tell me your experience and results im only nervous because my nephrologist was so firm set that the biopsy is very important because he said labs shows something inflammatory is happening . I’m over it . ALSO HAppy LUPUS AWARENESS MONTH 💜

Lately I’ve really been struggling and just needed to share with people who understand.

I have lupus along with POTS and a few other conditions, and things have been getting harder over the last couple months. My fatigue has been deadly I’m sleepy 10 hours n still it’s not enough and dizziness and joint pain have been a lot worse, and I’ve been having episodes where I feel like I might faint from simple daily things. Even showering can leave me dizzy and needing to sit down.

I recently had an episode in the grocery store where I suddenly felt faint, dizzy and had to sit on the ground immediately just to avoid passing out. It’s been really scary and honestly overwhelming.

On top of that, I’m trying to keep up with my kids, school, appointments, and everyday life, but my body just feels exhausted all the time. I’ve also been struggling to get to important medical appointments and blood work because even basic tasks feel draining.

Emotionally it’s been a lot too. My partner isn’t all bad, but sometimes small comments or reactions make me feel even worse about being sick, and I’ve been feeling really close to breaking down lately.

I’m just looking for encouragement or to hear from others who’ve gone through similar flares or difficult periods like this. It helps to know I’m not alone.

Thank you for reading 💜