New Heart Needed
If any has had this symptom appear while waiting for a heart?
So, the last few weeks I've been having trouble sleeping. I notified the Heart Failure Clinic at Maine Med (day-to-day heart management), and they had me come in for a check, and of course, my heart isn't doing so well. I have been waking up 2 to 3 times a night, panting and soaked in a cold sweat. They told me my heart is getting worse, and this is an indication of congestive heart failure advancing. I have a congenital heart defect called WPW. I'm 100% paced. LVAD is out of the question. My legs and feet don't swell from retaining water, but I am carrying it in my midsection like a pool floatie. They decided today that they are going to put me on a water pill, Lasix, I believe. At that point, I wasn't really comprehending, but yes Lasix my sister said. The Mass General Heart Transplant Team is trying to get me all my last appointments done, a CT scan of my arteries, an Ultrasound, and some fancy CT that can only be done at the hospital, then they will have a better understanding of where to place me on the list. It was expected I would be Status 6 or 5, but that is changing now.